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2014

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"Trials: A Desperate Fight to Save Kids and Change Science" - 14 Nov. 2013

The Wall Street Journal

 

In "Trials," a sweeping, multimedia project, reporter Amy Dockser Marcus followed a group of families and scientists trying to accelerate the development of a drug to treat Niemann-Pick Type C disease, a rare and fatal disorder of cholesterol metabolism that strikes primarily children. Those with the disease, which gradually steals mobility, speech, and the ability to swallow, seldom live beyond their teen years. The families and scientists, whom Dockser Marcus followed for six years, were part of a fledgling movement to change medical science in the United States and gain a...Read more